Skip to main content

quick update

It's looking like Levi will be coming home tomorrow afternoon! While I'm not going to do a dance until he's in the back of our car, we are making detailed preparations for a discharge tomorrow.

They have decided to send Levi home on an one-eighth of an oxygen tank, which we can use on an "as needed" basis along with two more meds (diuretics) to help with his fluid retention (one of which is apparently on a nationwide shortage, so I'll have to crush up my own pills to push through his tube since they don't have the liquid form!).   Man I think I'm ready to be a pharmacist, therapist, and nurse now.

While there is a lot of juggling involved with discharge, we are grateful to have everything we need in place right now, and I think it will be a blessing to have the oxygen for those "scary" moments at home.

We still have quite a journey ahead of us, and I'll try to update whenever possible, but know that we are beyond grateful for all your love and prayers!  God is good, and He continues to see us through all of life's ups and downs that are surely to come.


God bless, The Smiths- future party of four.

~CC

Comments

Popular posts from this blog

"His legs flail about as if independent from his body!"

If you are a "Friends" watcher as I have been known to be, you will appreciate that quote. I am getting to see the Chandler Bing's greatest fear--Michael Flatley and the "Lord of the Dance" performance. I am so excited! I've seen a lot of different types of performances in my lifetime (even the gravely strange or soberly artistic modern dance shows), but I've never seen an Irish Riverdance! My mom got tickets for us back in October for my birthday. She is so astute and thoughtful! In case you aren't familiar with "Lord of the Dance." Here is what Wikipedia has to say about Mr. Flately's Dance: "Lord of the Dance is an Irish musical and dance production that was created, choreographed, and produced by Irish-American dancer Michael Flatley, who also took a starring role. Michael Flatley found his first fame starring in Riverdance, but he left the show in 1995 before its debut in London after a disagreement over creative control. F

When you smile...

The whole world smiles! This was his very first "conscious smile" Who says you can't dress up little boys for fun too? Silas enjoyed sleeping at the lake instead of fishing or swimming. Anyone surprised? Our newest pastime consists of singing to Silas until he shows us his new array of smiles. Matthew discovered this newest ability when he began singing a classical ballad... I won't embarrass him by naming the lyrics. It doesn't matter how tired you are, this will make everything better! I mean come on. Are you still having a bad day? Did that make it better yet!? Had my  first few outing without the little man to go to coffee, dance, and this beautiful woman's wedding shower. Love you Christi! Thanks to my old roomie for some over-sized coffee mugs to start my day right. A cup of joe and the Word make life worth living. This is his favorite gesture.  I think he's solving the world's problems. That a boy Silas. I knew