I recently read a devotional that captured the creativity and power that our God possesses, which we continuously forget. In the Book of Exodus, the Israelites were pretty upset with Moses:
|The wagon we grabbed at CHOA was such a sweet moment. Look who it's in honor of!?|
|Our little man is still off of oxygen!|
|We were blessed with a first time meeting between our boys. Silas and Levi both did amazing!|
|For the Fourth we were finally a family of four!|
|Celebrated the fourth with some old-school blueberry picking.|
|Watch this progression of firework viewing... (first there was fear)|
We are all taking steps to get Levi home! They are thinking in the next 5-10 days!
He is still off of oxygen!
He is tolerating his new feeds via his g-tube and the fundo has kept him from spitting up!
Our boys got to meet and I would have cried tears of joy had I not wanted either child to witness it.
Levi may have an infection around the g-tube site. He's pretty uncomfortable. He's on antibiotics now, but it may lengthen his hospital stay until it's under control.
Levi still de-sats some (hold his breath), so please pray this in infrequent when he comes home (if at all).
Matthew and I have to "room-in" at CHOA tomorrow for 8 hours so the nurses and doctors can watch us care for our child. We have a lot to learn in a little bit of time.
We have so many different appointments that have to occur with Levi in the coming months. Please pray for our ability to schedule all of these, and for Levi to have the right therapists and doctors treating him either at home or in clinics. He hasn't had much therapy this last week because of the surgery and holiday. Pray that he doesn't take steps backwards.
Pray that Levi comes home at just the right time, and we all adjust well to the changes.
Thank you so very very much for your constant love!