Skip to main content

Quick update



Without going into all the details, I am excited to say the ball seems to be rolling for little Levi. We would love your prayers as we prepare for an important meeting on Monday with his entire "care team." We have several questions that need to be answered before we take next steps, and we will sit down together to hash out the details regarding his discharge plan.

PRAISES-
- Levi has done so much better off the NG tube and only keeping his intestinal feeds going (TP tube). 
- Levi just about weighs enough for a G tube surgery!
- A different GI doctor randomly stopped by yesterday and agreed with our plan to rid him of any nasal or oral tubes and move forward with a G tube and stomach wrap!
- Levi had a successful circumcision yesterday!
- Levi passed his hearing test! But he had some fluid in his ears, so a follow-up visit will happen in the next month.
- We've had several great visits with Levi!
- Silas has been such a ball of joy!

PRAYERS-
- Questions answered during Monday's meeting.
- Decisions for other muscular tests during G tube placement.
- The right doctors and nurses on hand during upcoming procedures.
- The perfect timing for procedures and discharge dates.
- Miracles with regard to Levi's ability to eat by mouth in the future.
- Levi's continued progress with his hand and feet. 
- Sweet family time as we wait through final hospital stays. 
- Continued trust in God for what it looks like to care for Levi at home.
- Please pray for the McMath family preparing their son for brain surgery tomorrow!


We are truly truly blessed.

~CC


Comments

Popular posts from this blog

Hard waves

Heartache and hard times seem to come like heat: in waves. Right now, I feel I have escaped the wave. I feel a sense of respite and relief. My world doesn't seem to be hanging in the balance of the next uncertainty. However, I feel the wave around me in the lives of others. It feels as if I'm sitting in the middle of my sweet autumn breeze while I'm hearing story after story of diagnosis, loss, and turmoil. Once upon a time, I would anxiously pray and wonder when my time of turmoil would next hit, but I've had my share of storms since then. Now I can praise God in good times, knowing the hard will come again. Instead of living in fear, I feel assurance that I will again experience respite and joy, and one day all my sorrows will cease when I leave this body. There's no sense in trying to avoid waves; if you have someone bigger, who created the oceans, then you can live at a level of ease no matter your circumstances. When I hear of these hurts, my heart hurts too, b...

Influenced

influence....... influenced. The latter word signifies a condition where someone else has an effect on your life. Taking off one little letter seems to insight a condition where you are the one acting upon the lives of others. I wish I could claim that I am rarely influenced by the opinions of others, but sadly that is not the case. If it does not go against my beliefs, principles, or well-being, I am one of those people that can easily jump on a bandwagon if presented with the material in an intelligent and legitimate manner. For that reason, I stay away from most things that can have a potential momentary or negative influence on my life. Unfortunately when it comes to little Levi, there are many different people taking care of him, and there are many different opinions regarding his current and future condition. For some reason, since the day Levi was born though, I have not searched the internet for a single thing regarding his care or condition. I believe God has protected me fro...

Confessions

I have had so many people thank me for my honesty on this blog lately. I haven't really thought about my level of truthfulness until those remarks of gratitude were given. I think I naturally wear my heart on my sleeve, and thanks to my upbringing, I often hear the term TMI, which just means I'm obviously not scared to express myself. However, I also believe that when you are going through something difficult, it's much easier to be raw and real in front of others, even complete strangers. Often times, it is these "real" moments that bridge the gap between hearts and allow us to live truth. I must confess, this marathon is really all over the place. It's like I hit mile 7, and I can't believe I'm only at mile 7! This past weekend, I felt covered in prayer, peace, and love. Matthew and I enjoyed a much needed date night, our little Levi enjoyed a quiet and restful weekend, and our big boy had a blast at our neighborhood Easter Egg Hunt.  I really ju...