Yes that's right.... for the past 24 hours, little Levi has been on the "low flow," or the "old man tank" as I like to call it, with just fractions of 100 percent oxygen streaming in his nostrils.
After celebrating Levi's supposed due date on Saturday, with some non-dairy angel food cake, we've witnessed Levi hit a small stride! It's all very encouraging, yet there are still a ton of enigmas floating around our baby's hospital bed. As I watched another hall-mate move their infant up to the seventh floor, and as I ask for yet another parking pass extension, I must choose to celebrate our small victories instead of moaning over our future hurdles.
One of my favorite books of the Bible (besides first John) is Ecclesiastes because I think I could read it a thousand times and still be mind boggled. However, one of the over-arching themes centers around the idea that there is really no contentment in this life without God. It says that we should enjoy the "lot" we are given; otherwise we will keep chasing after some "better" tomorrow that doesn't exist.
|One of our best friends ever!|
|The train "conductor" can play at his station for hours on end!|
- The blood work results regarding muscular issues won't be back for another week! Patience is a true virtue, but time can be a blessing too!
- Levi may begin the swallow study this week if doctors think he's ready, and I've been warned not to get my hopes up- that he may have a "very difficult time eating" and need a lot of therapy if not a more permanent feeding tube (which would be better than surgery).
- Levi is going to see an orthopaedic doctor this week regarding his hand and feet. He may have some nerve damage in his hand.
- Levi needs to stay strong lung-wise so that we can continue to progress towards getting him home.
- Levi is still on several different meds. Praying that as he weens from these meds, he doesn't struggle respiratory-wise.
Thank you so much for your prayers and love!