Skip to main content

Lucky

"Levi is lucky he was born so early," said Levi's oldest brother the other day during bath time.
When taking care of my boys in assembly-line fashion, it is usually the first-born that tends to whine and wince over subtle setbacks. I explained to him that because Levi has experienced such difficulties in his two years of life, his tolerance is a bit higher than others. Thus, big brother Si thought Levi lucky. "Well, that's one way to look at it," I exclaimed. Then I went on to assure my son that we all face different hard things at different times, which all serve to make us stronger, and he was very lucky that he didn't have to be born so early.
Sometimes I think that Levi's G-tube serves as my own personal reminder of what we've been through these past couple of years. I'm starting to think in a very weird way that I don't mind it. I don't mind the therapy sessions and doctors appointments because it's nothing too critical at this point. Rather it keeps our family focused on something outside of ourselves.
That friend I visited a month ago just delivered her son at 26 weeks, and she and her husband simultaneously said good-bye to him the very next day. As my heart broke with them over such a loss, I couldn't help but rummage through some of Levi's things remembering his own battle to survive. That's when I was flooded with reminders of how miraculous his journey has been thus far. We could very well say farewell to any of our children at any point, but it's those bitter roads that teach us how sweetness really tastes. I see those families who have walked harder roads than us, yet they hold continual banners of hope in healing instead of complaints in daily crosses. I pray none of us forgets, but I also pray we don't need an eternal G-tube to remember what matters most.
I came across a photograph that was taken of Levi around four months of age. His favorite doctor and nurse decided to take him outside for the first time. Even though I didn't get to be a part of such a large milestone (and I'm told an illegal milestone), I was eternally grateful that he finally ventured out of the hospital because it meant he may actually come home one day. Home. No matter how many days we get at home together, I will cherish them. I think that's why I love this stage of tiresome tiny faces because they are all under our roof right now. Praise God for each face we get to see, even if for a day.


I couldn't help but picture little Levi back in his incubator here in his bed.

Annual Touch a truck day!

He's grown so much since our first visit!

Old school date night...

at Chastain jazz festival. I love dancing under stars!

Silas' preschool started! And the other two were anxious to partake!

First organized gymnastics class started too!

Monkey man loved it!

And Levi loved the waiting room!

We are wearing T-shirts now! No more onesies during the day!

Check out my G tube! 

This man is all over the place now, so we have frequent dance parties during dinner prep!

Some days I actually prefer running errands with these funny, crazy kids!

Levi's nutrition appointment was canceled due to his nutritionist going into labor a week early, but that means we have another week to grow! Thank you for prayers!

~Lucky Buster

Comments

Popular posts from this blog

Hard waves

Heartache and hard times seem to come like heat: in waves. Right now, I feel I have escaped the wave. I feel a sense of respite and relief. My world doesn't seem to be hanging in the balance of the next uncertainty. However, I feel the wave around me in the lives of others. It feels as if I'm sitting in the middle of my sweet autumn breeze while I'm hearing story after story of diagnosis, loss, and turmoil. Once upon a time, I would anxiously pray and wonder when my time of turmoil would next hit, but I've had my share of storms since then. Now I can praise God in good times, knowing the hard will come again. Instead of living in fear, I feel assurance that I will again experience respite and joy, and one day all my sorrows will cease when I leave this body. There's no sense in trying to avoid waves; if you have someone bigger, who created the oceans, then you can live at a level of ease no matter your circumstances. When I hear of these hurts, my heart hurts too, b...

Confessions

I have had so many people thank me for my honesty on this blog lately. I haven't really thought about my level of truthfulness until those remarks of gratitude were given. I think I naturally wear my heart on my sleeve, and thanks to my upbringing, I often hear the term TMI, which just means I'm obviously not scared to express myself. However, I also believe that when you are going through something difficult, it's much easier to be raw and real in front of others, even complete strangers. Often times, it is these "real" moments that bridge the gap between hearts and allow us to live truth. I must confess, this marathon is really all over the place. It's like I hit mile 7, and I can't believe I'm only at mile 7! This past weekend, I felt covered in prayer, peace, and love. Matthew and I enjoyed a much needed date night, our little Levi enjoyed a quiet and restful weekend, and our big boy had a blast at our neighborhood Easter Egg Hunt.  I really ju...

Influenced

influence....... influenced. The latter word signifies a condition where someone else has an effect on your life. Taking off one little letter seems to insight a condition where you are the one acting upon the lives of others. I wish I could claim that I am rarely influenced by the opinions of others, but sadly that is not the case. If it does not go against my beliefs, principles, or well-being, I am one of those people that can easily jump on a bandwagon if presented with the material in an intelligent and legitimate manner. For that reason, I stay away from most things that can have a potential momentary or negative influence on my life. Unfortunately when it comes to little Levi, there are many different people taking care of him, and there are many different opinions regarding his current and future condition. For some reason, since the day Levi was born though, I have not searched the internet for a single thing regarding his care or condition. I believe God has protected me fro...